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I was diagnosed with Chronic Myelogenous Leukemia CML in June of 2010. I have been on Gleevec for about a year and a half now as Tasigna did not work for me. I have had various side effects like others (i.e. swelling in the face, diarrhea, body sores, and muscle aches). Thank heaven I did not lose my hair. The worst is the sores in my mouth that I cannot get rid of and the doctors do not find anything to give me any relief! If I had to pay for the medicines myself I could not do it but with my wonderful insurance I am able to take the medicines and live a good life. Otherwise I do not know where I would be without it. I just got married in August 2012 to my soul mate and this medication give me a new lease on life!
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I was in one of the first studies on Gleevec (STI571). I started on Feb. 5th 2000. It has been a life saver. Some side effects but it's better than being dead. The cost is high but it is was it is to stay alive. Was in remission less then 6 months, I have been on 300 mg all these years.
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